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Resources
& Tools
*Titles listed alphabetically
Description
A twelve page booklet which describes Alzheimer's disease and its stages. Commonly
asked questions and answers are included. General lists of support sources are
listed as well as specific programs and agencies in South Carolina. Revisions
of the handbook were made possible with demonstration funds.
Created:
Format: Booklet
Purpose: Specialized education and outreach
Targeted Cultural Group: General
Author/Producer: South Carolina Governor's
Office Division on Aging
Comment:
Contact Source: Barbara Kelley
Phone numbers: (803) 737-7500
Audience: Caregivers and families
Reference #: 14
Description
An informational packet translated from the English version of the same name
and provided by the Alzheimer's Society of British Columbia. The text has been
revised and modified by staff from the Chinese Information and Service Center.
The brochure provides answers to common questions that people may ask about Alzheimer's
disease, communicating, and dealing with behaviors and stress.
Created: 1996
Format: Information Packet
Purpose: Specialized education
Targeted Cultural Group: Chinese
Author/Producer: Alzheimer's Society of British
Columbia - English version. Translated, modified and edited by the staff from
Chinese Information and Service Center
Comment:
Contact Source: Chinese Information and Service
Center
Phone numbers: (206) 624-5633
Audience: Families and general public
Reference #: 15
Description
The fact sheet covers the issues involved in Alzheimer's disease management including
a comprehensive evaluation, advance directives, behavior management, and resources.
Created:
Format: Fact sheet
Purpose: Increase consumer awareness
Targeted Cultural Group: General
Author/Producer: Elizabeth Heck, LCSW
Comment:
Contact Source: Elizabeth Heck, LCSW
Phone numbers: (323) 938-3379
Audience: Persons with dementia and their
families
Reference #: 16
Description
A compact booklet comprising testimonial quotes from caregivers and tips and
resources for dealing with dementia. It was designed to encourage readers to
use respite services and includes a list of demonstration affiliated respite
sites in Oregon and resource addresses and phone numbers. An excellent brochure,
designed generically for use by any local agency, to promote respite services
to family caregivers.
Created: 1996
Format: Booklet
Purpose: Outreach materials
Targeted Cultural Group: General
Author/Producer: Legacy Health System and
Alzheimer's Demonstration Project
Comment:
Contact Source: Leah Eskanazi, Legacy Health
System
Phone numbers: (503) 413-6778
Audience: Families, caregivers, direct care
providers, and service providers
Reference #: 17
Description
A scholarly article written by C.M. Connell, S.L. Cole, H. Avey, C. Benedict,
and S. Gilman. The article researches the attitudes towards services and the
network relationships between families and service providers.
Created: 1996
Format: Article
Purpose: Specialized education
Targeted Cultural Group: General
Author/Producer: University of Michigan Alzheimer's
Disease Research Center / Community Outreach Project
Comment:
Contact Source: Sara Holmes, Education Core
Coordinator, Michigan Alzheimer Disease Research Center
Phone numbers: (313) 764-2190
Audience: General public
Reference #: 18
Description
The fotonovela is a bilingual (Spanish / English) document which consists of
56 pages and cover which describes Alzheimer's disease and other dementias with
pictures and words that are easy to understand.
Created: December 1996
Format: Booklet
Purpose: Specialized education
Targeted Cultural Group: Spanish speaking
populations
Author/Producer: Seamar Hispanic Alzheimer's
Project
Comment:
Contact Source: Ninfa Quiroz, Seamar Community
Health Center
Phone numbers: (206) 764-4700
Audience: General Public
Reference #: 19
Description
A series of articles appearing monthly in the D.C. Spotlight on Aging of the
Washington Senior Beacon.
Created: Issues began in October 1992
Format: Articles
Purpose: Outreach materials
Targeted Cultural Group: General
Author/Producer: Janet Colwell
Comment:
Contact Source: Karyn Barquin, DC Office
on Aging
Phone numbers: (202)727-5622
Audience: Families, caregivers, and general
public
Reference #: 20
Description
A guide for the Alzheimer's caregiver. This is a very basic guide designed to
provide the family with caregiving tips and Alzheimer's resources.
Created: Spring 1996
Format: Handbook
Purpose: Specialized education
Targeted Cultural Group: General
Author/Producer: Northwest Personal Support
Services, Inc.
Comment:
Contact Source: Debbie Cole, Northwest Personal
Support Services, Inc.
Phone numbers: (706) 692-3770
Audience: Caregivers and families
Reference #: 21
Description
The continuum of care matrixes tools for families and care managers outlining
the symptoms of persons with a predisposition to, or diagnosis of, Alzheimer's
disease, and their needs and available resources. These tools can be used for
planning and on-going care management by both the family and their health care
providers.
Created:
Format: Matrix Tool
Purpose: Quick reference
Targeted Cultural Group: General
Author/Producer: Sandy O. Washington, MSW,
Alzheimer's Association Greater Washington Chapter
Comment:
Contact Source: Alzheimer's Association Greater
Washington Chapter
Phone numbers: (800) 331-7299 or (301) 652-6446
Audience: Clinicians, family caregivers,
and care managers
Reference #: 22
Description
A comprehensive manual on meeting the needs of Latinos suffering from Alzheimer's
disease based on the Demonstration in California. Includes sections on outreach,
community involvement, and sensitivity to cultural values. This manual includes
findings based on data available from the demonstration. It highlights project
activities which creatively served to empower caregivers and integrate services
into the community.
Created:
Format: Manual
Purpose: Specialized education
Targeted Cultural Group: Spanish speaking
population
Author/Producer: California Demonstration
Project staff
Comment:
Contact Source: Los Angeles Alzheimer's Association
Phone numbers: (213) 938-3379
Audience: Service providers
Reference #: 23
Description
This document was used to establish general policies for implementing the Demonstration.
It includes English and Spanish intake forms and translated screening instruments.
Translated intake / screening tools may be useful for providers of helpline or
case management services. The protocol provides a general idea of how the demonstration
was structured locally with a focus on case management activities.
Created:
Format: Handbook
Purpose: Specialized education
Targeted Cultural Group: Spanish speaking
population
Author/Producer: California Demonstration
Project staff
Comment:
Contact Source: Los Angeles Alzheimer's Association
Phone numbers: (213) 938-3379
Audience: Service providers
Reference #: 24
Description
A packet containing information on the following topics: dementia, difficult
behaviors, providing care, common caregiver worries, legal concerns, and resources.
Created: 1994
Format: Pamphlets
Purpose: Specialized education
Targeted Cultural Group: African-American,
and Spanish speaking populations
Author/Producer: Marla Lahat and Valen Brown,
Alzheimer's Demonstration Grant Project
Comment:
Contact Source: Marla Lahat, AL-CARE
Phone numbers: (202) 726-8870
Audience: Families and caregivers
Reference #: 25
Description
A general guide for professional and family caregivers, this booklet covers care
planning, communication issues, activity and behavior management, problems and
approaches for difficult behaviors, and a bibliography.
Created:
Format: Guide
Purpose: Education
Targeted Cultural Group: General
Author/Producer: Alzheimer's Care Center,
Gardiner, Maine
Comment:
Contact Source: Alzheimer's Care Center
Phone numbers: (207) 626-1770
Audience: General
Reference #: 26
Description
This clinical practice guideline represents core care recommendations for Alzheimer's
disease management that are clear, measurable, practical, and based on scientific
evidence, as available. The intended audience for this guideline is primary care
practitioners including physicians, nurses, and social workers.
Created:
Format: Guidelines
Purpose: Promote a standard of care in treatment
of Alzheimer's disease
Targeted Cultural Group: General
Author/Producer: California Workgroup on
Alzheimer's Disease Management
Comment:
Contact Source: Elizabeth Heck, LCSW
Phone numbers: (323) 938-3379
Audience: Primary care providers
Reference #: 27
Description
This provides families with information to consider and questions to ask when
hiring an in-home personal care provider.
Created:
Format: Brochure
Purpose: Specialized Education
Targeted Cultural Group: General
Author/Producer: Alzheimer's Association,
Central Maryland Chapter and Maryland Association for Home Care Agencies
Comment:
Contact Source: Lisa Brakebill, Program Director
Phone numbers: (410) 561-9099
Audience: General public
Reference #: 28
Description
This booklet incorporates much of the material in the previous book's contents
and handouts and broadens the audience to include adult day service personnel
and family members. Similar to the first booklet, sample families are presented
representing the early, middle, and late stages of Alzheimer's disease.
Created:
Format: Training Manual
Purpose: Training care providers
Targeted Cultural Group: General
Author/Producer: Lisa Gwyther, MSW and Edna
Ballard, MSW
Comment:
Contact Source: Marian Sigmon
Phone numbers: (919) 733-0440
Audience: Families, persons caring for individuals
with Alzheimer's disease in adult day services, or in-home service or assisted
living staff
Reference #: 29
Description
A scholarly article written by C.M. Connell and S.L. Kole.
Created: 1996
Format: Article
Purpose: Specialized education
Targeted Cultural Group: General
Author/Producer: University of Michigan Alzheimer's
Disease Research Center / Community Outreach Project
Comment:
Contact Source: Sara Holmes, Education Core
Coordinator, Michigan Alzheimer Disease Research Center
Phone numbers: (313) 764-2190
Audience: General public
Reference #: 30
Description
A scholarly journal article written by C.M. Connell, S.L. Cole, C. Benedict,
S.B. Holmes, S. Gilman, and E. Beane. Describes the process of increasing networking
for service delivery.
Created: 1994
Format: Article
Purpose: Specialized education
Targeted Cultural Group: General
Author/Producer: Michigan Alzheimer's Disease
Research Center / Community Outreach Education Project
Comment:
Contact Source: Sara Holmes, Education Core
Coordinator, Michigan Alzheimer Disease Research Center
Phone numbers: (313) 764-2190
Audience: General public
Reference #: 31
Description
A collection of fact sheets on memory loss, maintaining intimacy, sexuality,
challenging behaviors, and depression in association with Alzheimer's disease.
Created:
Format: Pamphlets
Purpose: Specialized education
Targeted Cultural Group: General
Author/Producer: Project Cope, South Carolina
Comment:
Contact Source: Barbara Kelley
Phone numbers: (803) 737-7500
Audience: Caregivers and families
Reference #: 32
Description
A self-directed care model has been developed to empower Alzheimer's caregivers
to choose and make arrangements for services that best meet their needs. This
model, which promotes the Administration on Aging's priority of consumer empowerment,
emphasizes the role of older persons as consumers by encouraging their participation
in planning, managing, and delivering the services they need. Presently operating
within 13 counties in the North Georgia Mountain region, this model, which is
being replicated in other parts of the country, is creating new paradigms in
service delivery by using vouchers and changing the role of traditional care
management.
Created:
Format: Manual
Purpose: Care Model
Targeted Cultural Group: General
Author/Producer: Legacy Link, Inc., Area
Agency on Aging
Comment:
Contact Source: Sue Myer, Program Director,
Legacy Express
Phone numbers: (770) 538-2654
Audience: Service providers, families, caregivers,
general public, and health professionals
Reference #: 33
Description
An overview of the findings of a survey conducted on the Crow Reservation provides
a descriptive portrait of Native American elders. The majority of the 139 elders
were interviewed in person in their homes. The report includes information on
the elder's household, tribal affiliations, age, housing characteristics, transportation
needs, food and nutrition, activities of daily living, health and medical care
use, and general challenges faced.
Created:
Format: Report
Purpose: Specialized Education
Targeted Cultural Group: General / Native
Americans
Author/Producer: Gary A. Refsland and Ann
O. Johnson
Comment:
Contact Source: Ann O. Johnson
Phone numbers: (406) 582-1492
Audience: General
Reference #: 34
Description
This packet was developed to assist physicians with the diagnosis of Alzheimer's
or other dementia related disorders. The packet includes some basic brochures
plus items specific to each Maryland region.
Created:
Format: Packet
Purpose: Reference
Targeted Cultural Group: General
Author/Producer: Eastern Shore: Delmarva
Community Services, Inc.; Baltimore: Alzheimer's Association, Central Maryland
Chapter; Western Maryland: Western Maryland Alzheimer's Association; Southern
Maryland: Alzheimer's Association, Southern Maryland
Comment:
Contact Source: Lisa Brakebill, Program Director
Phone numbers: (410) 561-9099
Audience: Nurses and Social Workers
Reference #: 35
Description
Guide to videos selected for primary care video package. Explains how and where
to acquire videos and how and why particular videos were selected.
Created:
Format: Pamphlet
Purpose: Outreach
Targeted Cultural Group: General
Author/Producer: Oregon Alzheimer's Demonstration
Project
Comment:
Contact Source: Rita Litwiller, Senior and
Disabled Services Division
Phone numbers: (503) 945-5838
Audience: Health professionals
Reference #: 36
Description
This booklet is a compilation of questions submitted to Dear Gail,
a support column featured in the Los Angeles Alzheimer's Association
Quarterly Newsletter.
The most frequently asked questions were compiled and translated with answers
from "Gail", a caregiver and volunteer.
Created: 1997
Format: Booklet
Purpose: Specialized education
Targeted Cultural Group: Spanish speaking
populations
Author/Producer: Staff and volunteers, Los
Angeles Alzheimer's Association
Comment:
Contact Source: Los Angeles Alzheimer's Association
Phone numbers: (213) 938-3379
Audience: Caregivers
Reference #: 37
Description
This report includes a survey of current practices of nursing and residential
care facilities caring for residents with Alzheimer's disease and / or dementia
and to assess family satisfaction with the care provided in special care units.
The intent was to determine the differences, if any, between the care provided
by special care units for persons with dementia and the care provided by traditional
nursing facilities and residential care facilities.
Created:
Format: Report
Purpose: Specialized Education
Targeted Cultural Group: General
Author/Producer: Institute for Health Policy,
Muskie School of Public Health
Comment:
Contact Source: Romaine Turyn
Phone numbers: (207) 624-5335
Audience: General
Reference #: 38
Description
This paper describes the importance of social support systems and how they fulfill
the needs of the patients's family.
Created:
Format: Article
Purpose: Specialized education
Targeted Cultural Group: Spanish speaking
populations
Author/Producer: Carmen Delia Sanchez, DSW
Comment:
Contact Source: PR-ASAP
Phone numbers: (809) 721-8590
Audience: Service providers and volunteers
Reference #: 39
Description
This information packet provides literature designed to educate professionals
and families about medication, mobility, and safety precautions for those with
dementia.
Created: 1996
Format: Handbook
Purpose: Training
Targeted Cultural Group: General
Author/Producer: University of Michigan Older
Americans Independence Center and Alzheimer's Disease Research Center
Comment:
Contact Source: Irene Kazieczko, Department
of Community Health
Phone numbers: (517) 373-2845
Audience: Health professionals, service providers,
and families
Reference #: 40
Description
A bibliography of Spanish language materials available related to Alzheimer's
disease. Each entry provides the author's description, a volunteer committee's
description, rating of literacy level, and the intended audience. The bibliography
contains information available at time of publication. It is not an exhaustive
list of items. Items include videos, fact sheets, books, and booklets. Information
about where to obtain the items and costs are included.
Created: 1995
Format: Handbook
Purpose: Specialized education
Targeted Cultural Group: Spanish speaking
populations
Author/Producer: Committee of volunteers,
caregivers and HRSA project staff
Comment: Cost: $17.00
Contact Source: Los Angeles Alzheimer's Association
Phone numbers: (213) 938-3379
Audience: Service providers, families, and
caregivers
Reference #: 41
Description
A booklet for churches and clergy which explains Alzheimer's disease, how to
communicate with those who have it, and how it affects families. Also a guide
for and quot;tending to the spiritual self and quot; and ways one can reach out
to those with Alzheimer's disease and their families.
Created: 1995
Format: Handbook
Purpose: Outreach materials
Targeted Cultural Group: General
Author/Producer: Lisa P. Gwyther, MSW; Duke
University, Center for Aging, Alzheimer's Family Support Program
Comment:
Contact Source: Duke University Medical Center
Phone numbers: (919) 684-8111
Audience: Families, clergy, volunteers, and
service providers
Reference #: 42
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Dept. of Health & Human Services
